One of NESTA 10 predictions for 2016 is: patients becoming citizen scientists and health going to be crowdsourced:
Patients become citizen scientists
2016 will bring a new generation of digitally-enabled and patient-led research, says John Loder…Crowdsourced health
This new data is produced, owned and controlled by patients. So it will be accessed on their terms – as active participants rather than passive subjects. The richest opportunities will arise when patients act as citizen scientists, actively measuring and interacting, within communities where they have a powerful voice in the direction and conduct of learning.
In other words, the next generation of research will be patient-led.
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See more at: http://www.nesta.org.uk/2016-predictions/patients-become-citizen-scientists#sthash.NBaA2VTU.dpuf